How is cystic fibrosis liver disease treated?
At Children's Hospital Colorado, CFLD patients are cared for in the Pediatric Liver Center in close collaboration with our Cystic Fibrosis Center. At the Pediatric Liver Center, doctors, nurses, social workers and dietitians with experience treating patients with CF and CFLD design the best treatment approach for each patient.
Although there is no known cure for CFLD, there are ways to reduce the effects of the disease. Usually, a combination of attention to diet and use of medications and procedures, such as endoscopy, are combined.
Most children with CFLD can lead long, productive lives managing their condition. However, in some patients, worsening problems from the scarring in the liver cause complications or liver failure and a liver transplant may be required.
Why choose Children's Hospital Colorado for your child's cystic fibrosis liver disease?
The CF Center at Children's Hospital Colorado is the largest CF center in the country. We have vast experience with CFLD and are at the forefront of research and testing for new medicines. The CF Center is a therapeutic development network center through the Cystic Fibrosis Foundation. We provide early access to clinical trials of new treatments for CFLD.
Our Pediatric Liver Center is part of the Cystic Fibrosis Liver Disease network through the Cystic Fibrosis Foundation and the NIH. The doctors at our Pediatric Liver Center are international leaders in the care of children with CFLD. Dr. Michael Narkewicz, the medical director at Children's Colorado Pediatric Liver Center is the head of the international CF Liver Disease Network and has studied CF liver disease for over 15 years.